Wednesday, April 25, 2012

Visit to the Neurologist

I mentioned in my last post that Logan's ENT was a bit concerned with some of the MRI results.  His concern was mainly the presence of white calcium deposits on his brain. Although he wasn't too worried about it, he called a local pediatric neurologist and went ahead and referred us just to check it out.  Apparently, this is pretty common in CMV kids.

Those of you that really know me, know that I am a worrier.  So, of course, I go and google this and find all the worse case scenarios I can find. Andrew finally talked me out of "researching" this and just waiting to see the doctor.

So, naturally, I was quite excited to go talk to the neurologist today only to get there and be seen by the nurse practitioner because the doctor was out of town.  Luckily for us, the nurse practitioner was very good at what he does and went over everything with us and answered our questions well.  He even called us back after hours once he spoke to the doctor about Logan!

Basically everything looks fine because the spots were nonspecific and, although he is a little slow in his development, the important thing is that he is developing.  At this point, the only concern the white spots cause is an increased risk for seizures.  We will hear from the doctor personally next week and go back in 4 months to make sure Logan is still developing appropriately.

Tuesday, April 10, 2012

Cochlear Implants, Here We Come!

Today was finally the day to go see Logan's ENT to discuss the results of his MRI from a couple of weeks ago.  We were up bright and early this morning to get Jasmine to Grandma's house and make it to Logan's 8 am appointment.... Did I mention I could use some Starbucks right about now?!? 

Although there are other concerns with the MRI results, he is a candidate for cochlear implants, which he is eligible for once he is a year old.  Unless there is a dramatic change to his hearing, he will get one implant in 3 months and the second 6 months after that.  As it was explained to us, since he has some hearing now, it is best to do one at a time so that he can rely on his aided ear to hear while the cochlear implant gets activated and mapped correctly (which could take 3-6 months). This way, he doesn't lose any valuable listening time.

I don't like the idea of him having to go through surgery twice in the span of a year, but if it gives him the best chance to be able to listen and speak, then we will go through whatever we have to.  At least by the second time, we will know what to expect.

We go back in 6 weeks to start discussing dates for surgery. In the meantime, we will be going through cochlear implant options with our friends at Sunshine Cottage.  I'm glad to finally have some direction here.