Catching Up

It's been a couple of months since I've updated this blog and I am sorry for that!  I hadn't realized it had been so long until I was chatting with a mom I recently met who has a 6 week old son who will be getting his first set of hearing aids soon and she brought up how she had been reading my blog....whoops!

It has been a bit of a whirlwind lately with Logan's speech development.  It's only been four months since he had really started trying to say words and imitating us.  In this short time, he has already gone from single words to two and three word phrases.  Last week, his speech therapist had asked about the three word phrases, since this development is so new, and I couldn't think of any examples so I decided to keep track of them over the last week. Here are some examples:

Help mama puff puff (aka cocoa puffs)
All done get down
No milk Jaz (when he didn't want his sister to have any milk)
More light on (He is a big fan of turning EVERY light on in the house. Me, not so much)
All done pancake
It's daddy's truck
Sorry. Gentle mama (He is also a fan of hitting and saying gentle after he gets in trouble.)
Help mama washer (At least he is a good little helper!)
No more water
All done eat. All done pizza (yes, this was all at one time!)
More pizza, yes please
Gentle pet Blackjack (He was hitting the dog and I was telling him to be gentle.)

There are more, but I thought this would give a good example of his progress.

Logan has also started going to a Mother's Day Out program once a week. His sister goes three times a week so we thought it would be good for him to get some exposure to kids his own age, learn to socialize, and get him used to the structure of a classroom setting. We thought it would be best to do this because next fall he will be attending the Sunshine Cottage Pre-K3 class five days a week.  Since it is an oral school for deaf children, they start them out early to give them a head start on catching up with their hearing peers.  The school also takes typical hearing children if they can be a language model in the classroom. Because of this, we will also be sending our daughter Jasmine to the 4 year old class next year. She is definitely a language role model and will talk anyone's ear off who will let her!

I also wanted to share a video of Logan talking at dinnertime:
http://www.youtube.com/watch?v=y8JmpTENl8w

Half a Year of Hearing

I can't believe it's already been 6 months since Logan's ears have been turned on!  He is such a different boy today than he was before he had his implants.  He has always been a happy boy, but he has really seemed to blossom over the last several months. He is such an explorer, always trying to take things apart and put them together again (like his daddy).  He is so independent and likes to feed himself.  He has gotten quite good using his fork and spoon.

Logan is on the go all day long. He is walking very well now, has gotten pretty good outside on uneven terrain and is trying to jump now.  Because he is doing so well, we were able to decrease his physical therapy services down to twice a month.  At this point, it is just practice for him, but his physical therapist will keep him on her service until he can jump, climb stairs, kick a ball and a few other gross motor skills.

If you recall, we also see a teacher from our school district, our advisor from Sunshine Cottage, and a deaf educator and speech therapist from Easter Seals on a weekly basis.  We added the speech therapy a few months ago to help Logan along a little more. We started with a different therapist than we have now but Logan really did not connect with her and most of his session consisted of him crying. So I asked for a different speech therapist about a month ago, but the week we were supposed to have our first session was the week that the flu struck our house.  We finally met her last week and we absolutely loved her.  She is on a whole other level than our first speech therapist and is perfect for Logan's team of teachers.  She came for her second session with Logan today and he immediately smiled and walked over to greet her!  That made me so happy because you can tell when he really connects with his teachers. He always gives hugs out to them and sometimes doesn't even want to come back to me!

As far as Logan's language progression, he is getting more and more words receptively every day!  Today Andrew said "Logan, hug mama" and he immediately looked toward me and came and hugged my leg.  Also, when I tell him "let's go upstairs" he will stop what he is doing and walk to the gate at the bottom of the stairs and wait for me there. He even goes to the door sometimes when I say "it's time to go!" 

Logan has also been babbling and imitating sounds more and more.  His latest attempts to say words have been "bath," "up," "uh-huh" and "on."  And much to Andrew's delight, he has finally mastered "dada!"

It's been a lot of hard work these past six months, and more of it is coming, but I can't wait to hear the payoff when he finally starts talking.

Loving the Love....From Sunshine Cottage

It is easy to tell when Logan's cochlear devices are working properly.  The front of each of his sound processors has an indicator light that blinks green when it is connected and working properly. If there is a problem or the coil is not sitting on his head correctly the light will blink orange.

For the past few weeks we've had intermittent problems with Logan's right side device. At first it would start blinking orange until we removed the coil from his head and repositioned it.  I finally solved this issue when I changed out the cable that goes from the processor to the coil that sits on his head.

I thought all our issues were over until a few days ago. I've made a habit to check the indicator lights throughout the day to make sure everything is working so that he gets as much access to language as possible. Well several times throughout the day I found that the sound processor had powered off.  Each time this happened, I turned it back on and made sure I locked the buttons just in case little fingers were getting to them.

Today I called Logan's awesome audiologist Marci from Sunshine Cottage about the issue and we did some troubleshooting together. She was leaving early to spend the weekend with family in another city and gave me her cell phone number in case I needed anything. She even called to check in with me after she left work.

Everything seemed to be fine until we got home from picking Jasmine up from her preschool. When I got Logan out of the car I noticed his processor was off. When I went to turn it on, nothing happened! I tried for several minutes and still nothing. So I tried a different, fully charged battery and it still didn't turn on. I immediately got out my phone to call Marci to let her know what was going on.  I can't even begin to express how awesome she is and how well she takes care of us.  She immediately called Cochlear Americas to overnight a premapped replacement sound processor. To ensure this could even happen, she had to take all Logan's mapping information with her on her trip.

I am so amazed by the love Logan has received from the wonderful women that work with him. This is just another example of how much they care for him and his success. Marci didn't have to do all this for us. She could have told me that I needed to call Cochlear Americas and work it out with them. But instead she chose to take time while she was off the clock to ensure Logan gets what he needs. She even asked me to let her know as soon as it arrives so that she knows he has it and that it is working properly.  We are so lucky to have these women in our lives and I am thankful for them everyday.

Cochlear Implant Love!!!

I literally have happy tears today!  This morning Logan and I went to Sunshine Cottage for testing.  It was the first time "in the booth" with his cochlear implants and I was anxious to get an idea of what he is hearing with his new ears.

His last hearing test results was with hearing aids and it showed that he responded to sounds in the 50 - 85 decibel range, depending on the frequency. You can compare 50 db to a nearby conversation, although many of the consonants in the English language fall in the 40db range.  And 85 db could be compared to a loud piano or a loud phone ringing. 

Well, during today's testing, Logan was responding at around 20-25 db!  That means he now has great access to language and is now falling in the mild hearing loss range for children.  Not only that, his testing today was based on behavioral responses from Logan and was not a test of his threshold for hearing, or the minimum level that he can hear a specific frequency.   What really has me ecstatic about this is that he may possibly be able to hear a whisper now, which is around 15 db!

I am looking forward to having more testing done in the coming months and to continue getting his cochlear programs mapped and tweeked so that he can get the most out of his devices.  

Finally, in other news, Logan has officially taken his first steps!

Activation Day!!!!

The day we've been waiting for has finally arrived! It's one week after surgery and today Logan's ears were turned on! It is the first day of his new hearing journey, and one that we are thrilled to be undertaking with him.  We were very anxious to see what his response would be when they turned the first one on and were well aware that some kids have no reaction, some smile or get excited and some cry because it is so new to them.  Of course, every parent who goes through this hopes for the big, excited response, but that is the exception rather than the rule when kids are activated.

The moment finally arrived once Marci, his wonderful audiologist, did her thing to get the first side ready to be turned on. When she turned on the first side poor little Logan was scared and cried.  As she went through the mapping of this first side, he got used to the sounds and started to respond much better. 

                                          Logan's First Response

                                          Logan gets accustomed to the sounds

It was a really long morning for Logan. He started acting really tired and getting fussy when we were still working on the first side. We even contemplated activating only one today and resuming tomorrow. But Andrew and I really wanted to get it all done, so we resorted to all the snacks and goodies I packed for him. Thank goodness for Veggie sticks, Mum-mums and puffs! 

By the time we got to doing the second side, he was already a pro at it!  He didn't cry this time. He would just look up at Marci, a veggie stick in hand, and would raise his eyebrows every time he heard something. For those of you that work with Logan regularly, you know this is his signature response! He had gotten his energy back up by the time the mapping was done.  By this time, he was back to flirting with his wonderful teacher Lindsey! 

                                          Logan's eyebrow raising
 

                                          Logan does the unexpected!

We were lucky enough to get to talk to an audiologist from Cochlear who happened to be on site at Sunshine Cottage today.  We were very interested to talk to her about how "waterproof" his new implants were.  She was very helpful and answered all of our questions.  She even encouraged us to experiment now while the devices are under warranty!

Once we left and picked Jasmine up from my mom, we went home for the kids' naps. Well Andrew and I realized how exhausting the morning had been and we napped also.  After our naps, we decided it was time to celebrate Logan's big day. And what better way to celebrate than to go out for some good ice cream! 

Having been through our first day with Logan's implants, I realize just how hard it is going to be just to keep them on his head.  The hearing aids were hard enough, and he certainly mastered the art of pulling them out of his ears. But since he is so small and the processors don't stay on his ears very well yet, the device is mostly just dangling from the magnet on his head with the wires so much easier for him to grab onto.  I'm sure we'll come up with a way to keep them on him, just like we did with the hearing aids. I'm not really anxious to have to put some type of headband on his head! Either way, I'm so excited to see what the future holds for him!

Counting Down!

There are a number of reasons that I am counting down the five days until Logan's surgery.  I am anxious to get this procedure over with and stop worrying about it. And of course, I can't wait to start this new chapter in his life.

However, another unexpected reason I am counting down is that I just can't wait to be done with these hearing aids! Yes, I know the cochlear implants will be a whole new set of headaches, but I am so done losing pieces of these hearing aids.

I hosted an in house playdate for the toddler playgroup I am a member of this morning. We had 11 toddlers, 3 infants, and of course, their moms here this morning.  It was a blast as usual.  But once everyone was gone for about 20 minutes, I noticed that Logan's processor from his left hearing aid was missing. The earhook and earmold were still there, so the processor managed to get unscrewed from the rest of it. I had to tear up the playroom again looking for it, but came up empty. I checked downstairs, in his hamper, and upstairs again and couldn't find it.

During all this, I was battling with Jasmine to stay in her room and take her nap. When I finally got her to stay in her room, I went back downstairs and started crawling on the floor everywhere Logan had been.  Unbelievably, I found it in the middle of the living room floor.  I was so relieved! The whole time I was looking for it I kept thinking I can't believe we made it this far without having to pay the deductible for a lost hearing aid and here we are, less than a week before surgery, and we've finally lost one.

I am so glad I found it and I am so ready to turn them back in to Sunshine Cottage.

Cochlear Implants, Here We Come!

Today was finally the day to go see Logan's ENT to discuss the results of his MRI from a couple of weeks ago.  We were up bright and early this morning to get Jasmine to Grandma's house and make it to Logan's 8 am appointment.... Did I mention I could use some Starbucks right about now?!? 

Although there are other concerns with the MRI results, he is a candidate for cochlear implants, which he is eligible for once he is a year old.  Unless there is a dramatic change to his hearing, he will get one implant in 3 months and the second 6 months after that.  As it was explained to us, since he has some hearing now, it is best to do one at a time so that he can rely on his aided ear to hear while the cochlear implant gets activated and mapped correctly (which could take 3-6 months). This way, he doesn't lose any valuable listening time.

I don't like the idea of him having to go through surgery twice in the span of a year, but if it gives him the best chance to be able to listen and speak, then we will go through whatever we have to.  At least by the second time, we will know what to expect.

We go back in 6 weeks to start discussing dates for surgery. In the meantime, we will be going through cochlear implant options with our friends at Sunshine Cottage.  I'm glad to finally have some direction here.