Wednesday, June 26, 2013

Cochlear Americas Ambassador Training

So this post is not so much about Logan's progress as it is about what I have been trying to do for him and other children like him.  As you know, I started this blog to document Logan's progress once we knew he'd be receiving cochlear implants and to help spread general awareness about the technology.  I've also started a meetup group for children with hearing loss that was initially for children ages birth to three, but has since been expanded to ten years of age.  In addition, I've done some volunteer work for Cochlear and raised money for Logan's school, Sunshine Cottage.

Last year, our Family participated in the Houston Walk for Hearing 5k event where I met the  Cochlear Awareness Manager for our area named Paula. We exchanged contact information and she put me in contact with some great people locally.  Eventually, I wound up doing some volunteer work for Cochlear, which I really enjoyed.  Then, last month Paula contacted me to ask if I was interested in doing some training on Cochlear Awareness in Denver.  I was thrilled! What better way to help my son and other children with hearing loss than to take the time to absorb as much as I can to help spread awareness?  After talking with Andrew about it, we decided that I should do it.

Houston Walk for Hearing 2012

Within a few weeks, I arrived in Denver and met some really great people who were so inspiring and strong.  Some were Cochlear recipients, and others, like me, were the parents of a cochlear recipient (or two).  We learned so much together and we got to hear each others' stories.  A few of them even had the room in tears. 

It was so exciting to see the Cochlear American offices and I loved how the walls were covered in  pictures and quotes from recipients.  There was even a recipient wall that had thousands of dots representing the number of Cochlear recipients (over 250,000 worldwide).

I wish I had a better picture of this!

The front of the Cochlear office
We spent a lot of time discussing the products, the upcoming products and ways to spread awareness about cochlear implants and hearing loss. I've already had the opportunity to use my increased knowledge to help people with questions!  One thing that was really interesting was a video that they played that demonstrated the lack of knowledge / awareness about what a cochlear implants is. And really, before Logan was born and diagnosed with profound hearing loss, I was one of those people who had never heard of them. This video is only three years old, so I really think if someone went around with the same question today, the results would be similar.


We also had the opportunity to talk and make connections with each other. Cochlear took great care of us and most of our connecting was over some delicious food!  They also planned a really fun evening on Saturday. We painted Red Rocks and sipped wine and had a total blast doing it!



I was sad to have the training end because the people there were awesome, but I am glad to say that I have made some good friends from it and am completely energized to spread more awareness about this wonderful technology.  I've even had the opportunity to visit one of these fabulous people at their home already (more on that soon)!

Monday, June 24, 2013

Disney World Vacation

Things have been so busy for me that I am finally trying to catch up on this blog.  Last month, my mom, my sister's family and my family took a trip to Disney World.  The kids and their cousins had a blast together and we are looking forward to going again with them in a year or two.

We all flew out on the same airplane.  Logan and Jasmine were excited to watch the airplanes while we waited for ours. Logan kept pointing out the window, saying "airplane!" with a big smile on his face.  As for the plane ride, thank goodness for iPads and tablets, because both Logan and Jasmine got to watch movies on the plane and they did great.  We even got to test out Logan's special earphones that plug directly into his sound processors.

We arrived at the Resort late, so it was off to bed for an early start in the morning.  It was Star Wars weekend so we headed to the Hollywood Studios to check it out.  The kids got to see some Storm Troopers and Darth Vader walking around. Although my kids are too young to know who they are, they still thought they were really cool! And their older cousins loved them!  We headed to Magic Kingdom after this and our first ride was the carousel.  Jasmine had to have a purple horse, so we found one and Logan rode next to her.  He had a blast on it and cried when we took him off.  This became a pattern after all the rides. I guess we really do have a daredevil on our hands!



The next day we went off to Animal Kingdom by ourselves. We got a bit of a late start so we missed some of the animals during their morning feedings. We were bummed about that, but we did go on a really cool safari where we got to see elephants, giraffes, warthogs, hippos and other animals.  The kids had  a great time doing that.  While we took a break there, Logan started pointing and yelling "bird, bird, bird," which was cool because he had never said the word before or even pointed at one when asked before.



The day before we left, Andrew and Logan had a father / son morning at Magic Kingdom, while my mom, my sister, Jasmine and I headed to Downtown Disney for a princess makeover.  She was very apprehensive to sit down and let them do her hair and makeup, which really isn't all that surprising since she is pretty shy around new situations.  I actually had to bribe her to get her to do it.  See, she LOVES stuffed animals so I told her we would go buy her one after we finished the makeover.  She immediately decided to do it and had so much fun once they started it.  We met up with Andrew and Logan at Magic Kingdom in the afternoon and got on as many rides as we could, since it was our last day there.  We had planned to leave when the parade started since we had seen it a couple of nights before. However, I decided that I wanted to look in one last store on Main Street, Andrew and I got separated and couldn't get a cell signal, so I went out to wait for him where my sister and her family were going to watch the parade. Well, to complicate things further, my mom, who was going to leave with us, decided to go see if she could find us in the store.  We must have all crossed paths because Andrew and I wound up watching the parade with my sister and my mom watched it from the other side!  I'm glad this happened because we had a much better view and the kids REALLY liked the parade.



The next morning, we  were up by 4:30 a.m. to catch a shuttle to the airport.  And as if we didn't have enough excitement during our trip there, Jasmine starts getting sick on the shuttle and got sick a few times during our flight. I'm so glad we had a direct flight.  But to put the exclamation on our trip, my dad was supposed to pick us up from the airport in my SUV and he finally got in touch with us when we were at the baggage claim.  My SUV had a flat when he went to get it so we had to take a 30 minute taxi ride home!

Regardless of all that drama, we had a fabulous time at Disney World and Logan had some great listening and language opportunities there.  While we were there, Logan said bird, bus, fish, horse and a few others that are escaping me for the first time. 



Thursday, June 6, 2013

Feeling Honored

Today Andrew and I attended the annual end of the year dinner that is put on by the Sunshine Cottage Parent Infant Program staff for the parents of children enrolled in the birth to three program.  It was great to see some of the friends we've made there and chat. It's funny, but this is one of the few places that I feel like a social butterfly (which is a weird feeling since I am really a very shy and reserved person). And it is one of the few places where I really have a hard time figuring out where to sit since there are so many people to catch up with.

As some of you know, since the time that Logan was diagnosed I have tried to find ways to contribute to parents and children at Sunshine Cottage and really any parents and / or children with hearing loss.  In a way, it has become a mission for me.  Because of this, last year I started a meetup group for children with hearing loss and have done what I can to do fundraising for Sunshine Cottage and other organizations for people with hearing loss.

Today at the dinner I was completely honored and humbled by the beautiful gesture of recognition from the Sunshine Cottage staff.  They presented me with a plaque and a beautiful picture of a heart that was drawn by a 9 year old student at the school.  She even called the piece "Becky's Caring Heart."  How beautiful and thoughtful is that?!  I am overcome with emotion and joy and I only wish I could do more!